Caregiving Guides & Resources

Supports for Individuals and Families

General Resources

Grief Resources

Caregiving Guides and Pamphlets

Advance Care Planning, Waterloo Wellington Learn more>

When Someone is Dying: What Can I Expect?  What Can I do?

These guides contain helpful information about what to expect at the end-of-life and may add to what the health care team has already discussed with families. We hope that the guides will help families understand and attend to a loved one’s changing needs and ease any fears or worries.

There is no cost for the guides.  The .pdf guides are downloadable in regular and large print formats.  For single copies, please download using the links below.  For multiple copies, please email us at

Please note: When printing  pamphlets please print on the coloured paper recommended below.

In the Community

When Someone is Dying in the Community:
What Can I Expect?  What Can I do?

Regular (.pdf)
Large Print (.pdf)



In Long-Term Care

When Someone is Dying in Long-Term Care:
What Can I Expect?  What Can I do?

Regular (.pdf)
Large Print (.pdf)



In Hospice

When Someone is Dying in Hospice:
What Can I Expect?  What Can I do?

Regular (.pdf)
Large Print (.pdf)



In Hospital

When Someone is Dying in Hospital:
What Can I Expect?  What Can I do?

Regular (.pdf)
Large Print (.pdf)



When Someone Dies – Some Next Steps for Family and Friends

The death of a relative or friend is one of the most stressful things that happens in life. If death is sudden or unexpected, the feeling of shock can seem overwhelming. Even when death is expected, it is still difficult to be prepared. While this booklet cannot anticipate every situation, we hope that it will answer some of your questions and help you make necessary arrangements. When Someone Dies – Download

Caregiver’s Guide: A Handbook About End-Of-Life Care

Written especially for family caregivers, this guide, plainly and in language easily understood, presents the medical and nursing information needed to help family caregivers understand the difficulties their loved ones are facing.  This informative tool aids family caregivers in becoming valuable members of the palliative care team while, at the same time, providing support physically, emotionally, and spiritually. Caregiver’s Guide – Download

ResuscitationResuscitation – A Decision-Making Guide for Patients, Families, and Caregivers

This pamphlet provides you with information to answer important questions that you as a patient, family member or caregiver may have about the term “resuscitation”.  Resuscitation is the word used to describe the actions that are taken to attempt to bring a person back to life when he/she has stopped breathing or his/her heart has stopped beating.  Download

Cardio-Pulmonary Resuscitation (CPR): A Decision Aid for Patients and their Families

This Question and Answer guide provides patients and families with useful information about CPR (what it is, what is involved, advantages and disadvantages, etc.). Download

Pain Intensity Scale Translations (21 Languages)

There is a new booklet available throughout Waterloo Region, Wellington-Dufferin to assist health care providers looking after patients who do not speak English. Translated into 21 languages, the pain scale assessment asks six questions of the patient on a scale of 0 to 10 about their pain. The English is on the back of each of the pages. The pages should be photocopied for ongoing use with a patient to evaluate effectiveness of treatment.  Download

Caring_Across_CulturesCaring Across Cultures – Multicultural Considerations in Palliative Care

Caring Across Cultures is intended to be a useful resource for caregivers working within a cultural mosaic. It is not…a scientific or academically objective document. Rather it has evolved from a grassroots investigation that has been primarily informed by interviews with community leaders and experts in palliative care.  Order Form

Comfort_Care_-_A_Guide_for_CaregiverrsComfort Care – A Guide for Caregivers

This guide is intended for caregivers of a person with Alzheimer’s Disease or by another type of degenerative disease of the brain, such as Parkinson’s Disease, the effects of multiple strokes or even certain forms of Multiple Sclerosis.  Download

Edmonton Symptom Assessment Scale (ESAS-r)